Name: Franck (14 years old)

Place (city and hospital): Hautepierre Hospital, Strasbourg

Date illness started (first medical appointment): -

Date of Gliomatosis cerebri diagnosis: -

Medical evidence for diagnosis: Cerebral biopsy, PET scan

Treatment: Cortisone; chemotherapy was scheduled however Franck died before treatment started.

Current status: Date of death was 20th December 2009

Franck’s story: After suffering various episodes of migraines during the summer of 2009, Franck underwent an MRI scan. The imaging showed “white patches” on Franck’s brain. At this point, the doctor’s initial prognosis was an inflammation of the brain (Acute Disseminated Encephalomyelitis (ADEM)) and a lumbar puncture was carried out. This ruled out the possibility of Multiple Sclerosis, and further analyses also ruled out other genetic disorders. The cancer was not revealed by any of the tests carried out including analysis of blood samples, scan results, the MRI scan and X-Rays. After cortisone treatments Franck showed no improvements. His condition deteriorated and on the 2nd December 2009 after a PET scan, the specialist let slip that the illness was “probably a gliomatosis.” The fateful diagnosis was confirmed by a biopsy. The tumour of unknown cause took Franck’s life on the 20th December 2009. An angel called Franck.