Other factors

Several centres specialising in the treatment of brain tumours also work with experts in complementary and alternative medicines including, amongst others, acupuncture and acupressure, reiki, massage, herbalism and dietary recommendations, which can help to control pain and the side effects of treatment. Speak to your doctor about these treatments, which are palliative, not curative.

We believe that any child suffering from brain cancer, especially those with highly aggressive tumours with little hope of a cure, should be treated by a multidisciplinary team. In addition to oncologists, neurologists, brain surgeons and radiologists, there should be psychological treatment, and a childhood palliative care team. Hospital should be a place where our children are not considered ‘diseased’, but a simply children with an illness.

We have only found one case of survival, although there is no histological confirmation (biopsy), and the MRI does not display the typical Gliomatosis infiltration pattern.