Now what?

For any parent, receives a diagnosis of cancer it is devastating; when the diagnosis is of gliomatosis cerebri, an abyss opens up before you.

With this section, we hope to share a few guidelines that helped us, things we did which helped Izas, like taking her out of the hospital where she was being treated for an illness she did not have, acute disseminated encephalomyelitis; as well as the difficulties that we encountered, like getting hold of documentation from the clinic, which we eventually managed after four requests (the last one through a lawyer, 9 months after Izas’s death), or getting her referral, which the neurologists and administrators denied us.