Who are we?

As explained in the “origins” section, this organisation was born out of Izas. It was set up by her parents, Jorge and Mónica, along with her sister, Ixeya.

Mercedes, Izas’s nursery teacher, is also with us. She loved Izas so much, and this love was reciprocated. When Mercedes found out about the terrible diagnosis, she requested time off from work, left her family in Huesca (our city), and moved to Barcelona for a few days to enjoy Izas’s company, to say goodbye. Izas could not have been happier. From the moment we had the idea, it was always in our head to propose that Mercedes join our project, who did not hesitate in the slightest to accept.

Montse, a good friend, far away. From the Canary Islands, she was a pillar of support, both during and after the illness. The distance never got in the way of her presence providing emotional support. As a publicist and short-story writer, she is taking care of the organisation’s image, leaflet design etc.

María, another good friend and also a publicist (with a strong sense of creativity), someone who the girls used to have so much fun with, is helping us with communication and especially with translation.

We can’t forget Javi and Ismael, another friends. Computer programmer and designer, who is in charge of the website.

María, a girl who we didn’t even know, knew about Izas’s story. She has a special talent for painting t-shirts, and she immediately offered to make them. Her generosity, empathy and effort is immeasurably valuable to us.

María, a friend of Izas’s aunt, who I had spoken to about the story and the project, is the designer of the t-shirts. Again, we didn’t know her previously, but both Marías have touched our heart.

Without Mónica, another mother at school who became a great friend, the torturous path to arriving at the diagnosis would have been more painful still. With her knowledge of rare diseases, she will act as an essential communication link between the organisation and the researchers, she will provide clarity within medical circles when it comes to paediatric gliomatosis cerebri.

Clara, a psychologist from the AECC in Huesca is helping us to cope without Izas and has also volunteered to be part of the organisation.

Sara, another friend, who drove the idea forward since it was sown, who spreads the word wherever she goes, is our best “salesperson”. Sara and Sergio came to Barcelona straight away to say goodbye to Izas, to sing their last songs for her.

Without the multidisciplinary neuro-oncology team at the Hospital Sant Joan de Deu, none of this would be possible. They diagnosed and cared for Izas, and they gave us the chance to donate her tissue for research. They have revised the content about the illness on our website, they have addressed gliomatosis in conferences, and the with their characteristic generosity, we will join forces to launch the research program. Without them, this organisation would have no direction, because during those difficult moments, they become family, and for good.

This website has kindly been translated into English with the help of the PerMondo initiative. PerMondo supports NGOs by translating their websites and documents for free, so they can spread their message. The translation agency Mondo Agit is the main sponsor of this initiative. Following translators have made this possible: Jack Levy, Polly Hudgell, Charlotte Ducrocq, Lindsey Ford and Charlotte Prévost.