Communication with doctors

It is essential that you ask every question that comes to mind. Plenty of questions will come up, so it may help you to write them down so you don’t forget them later, during this period of great emotional stress. You can also write down the answers, as many terms will be new and unknown; it’s likely that after getting these answers you’ll think of new questions when you go back to read them. Other parents might go blank, silent – all possible reactions are valid, and the psychological team at the hospital will be able to help you.
When faced with proposals for treatment, it is important to know what’s involved, what it’s for, what can be expected from this medication and what the side-effects are.

Remember that there are no “stupid questions”. You have to make very difficult decisions at a very complicated time, and the information and your heart will help you decide.