Mission

  1. To promote research into paediatric gliomatisis cerebri
  2.  To increase awareness in the medical world surrouding paediatric gliomatosis cerebri; that is, its diagnosis, treatment and important medical considerations
  3. To raise social awareness of the disease and its terrible consequences
  4.  To create a network of affected families, with a regularly updated and accessible bank of information about symptoms, clinical trials, palliative care etc. This would provide parents with a forum to exchange information and to find emotional support
  5. To provide information about tissue banks, their importance and how they are used