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Unfortunately, we have found many links on the internet which are simply copy-and-paste jobs: “diffuse glial tumour, very rare, difficult to diagnose…poor outlook.”
From the gliomatosis section, we have tried to be as clear and precise as possible, without using vague speculations like “poor outlook.”
Reading medical journals and case studies leads us to believe that, at this point in time, there is no cure.
It may be useful for you to familiarise yourself with relevant medical terms, such as glial, corticoids, ataxia, paresis, bradyarthria, etc.
Contact other parents – there are not many of us and we’re spread all over the world, but in our forum we will try to provide an answer to any question. Using Google Translate for a quick reply, we will try to translate and reply to all messages in the shortest amount of time possible.
